THURSDAY, JULY 07, 2005 02:20 PM CST
Bob feels that he wa
THURSDAY, JULY 07, 2005 02:20 PM CST
Bob feels that he wants to keep this site open to everyone who wants to visit, so welcome again, and thanks for the good wishes and messages everyone is sending.
We are combining conventional and complementary approaches to sending Bob's tumor into remission. Currently Bob is getting radiation five times a week combined with a low-dose chemotherapy agent, Temodar, which enhances the effectiveness of the radiation. In addition, he is taking melatonin, as well as a large number of nutritional supplements which have demonstrated effectiveness against cancer, and specifically against brain cancer. If you know of something that you feel would be important for us to know in making decisions about Bob's treatment plan, please feel free to pass it on here. We will need to make a decision about two to four weeks after the end of radiation as to what to do next. I am reading and learning everything I can to make the best decision possible.
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As many of you know by now I am currently bed ridden with a brain tumor. My condition changes from day to day. Ileana and I want to answer your questions about my condition. Ileana will be using this web site to update everyone.
Click 'Read Story' below to read on...
(From Ileana)
Bob first noticed something wrong with his arm in late March. By the end of a lovely trip to Alaska, it was bad enough to check in with his doctor. The MRI showed the tumor on April 28th.
Bob went for a second opinion at Duke on May 10th and was told that it was inoperable because of the location in the motor strip ('the eloquent area of the brain'). On May 16th he had a biopsy at Duke. He started to lose leg function a few days later. By the May 27th he could no longer use his left leg. It turned out that this was because of a bleed in the tumor. It is our hope that as the bleed resorbs function will return.
Bob's tumor is a glioblastoma multiforme or GBM for short. We are lucky his children have helped us find resources by and about people with this kind of tumor. We are working with a nutritionist, Dr. Jean Wallace, who specializes in brain tumors, and feel very fortunate to have made this connection.
gute besserung , bob!!
- wer will das wissen 
)
Einfach !!
